...a miracle baby, born November 3, 2003 to my mother, opera singer Melissa Perry and my father, Maestro Hugh Kronrot, who were told it was too late to conceive. Without medical assistance, after many prayers to St. Anne, and a quick belated (by 11 years!) honeymoon to Venice, I was conceived anyway. You can imagine how dumbfounded they were, when after a perfect pregnancy, I had a crash landing at birth. There was a loss of oxygen, a severe drop in heart rate and an emergency C-section which resulted in my arrival as blue, without breath and barely alive. After I was resuscitated, the doctors diagnosed me with a brain injury. I had cerebral palsy, spastic quadriplegia to be specific. They believed I would be blind, deaf, incapable of intentional movement, walking, or sitting upright and they suggested that my parents consider hospice care, or institutionalization.
Fortunately, my parents believed my little life held more promise. In the beginning, they held onto only the increased number of blips as I listened to their voices while I lay in a coma like state in the ventilator machine. They were told that every blip over 15 was a breath I’d taken of my own volition. When Mom talked I went up to 50, and when Dad, who was able to visit less often, talked, I went up 80! They believed I could hear them, I was relating to them and that I wanted to live. Mom and Dad believed that if they had faith, they would figure out what I needed and then they would find the means for me to get it. With God’s help and the prayers, gifts and help of many, many friends, both of these things have come true.
I am now 17 months old at this writing, and I hear quite well, see shapes and colors, swallow, sit and crawl with assistance, and occasionally make 2 word sentences. I also laugh out loud for Patty Cake and have just learned to wave bye-bye! I definitely have my health challenges but so far with excellent nursing and a great and dedicated medical team, I am pulling through every time. To read my full story, learn about the wonderful therapies helping me or find out how you can help me continue to receive these therapies, I welcome you to my website.
I'm a smart little girl but I still have trouble holding my head up. Sometimes I arch my back. I'm just starting to crawl, and coordinating my feet and hands is a challenge. I am tube fed and have to learn to swallow reliably before I can eat real food. My breathing is imperfect and colds often land me in the hospital. I still have a long way to go and very much need my therapies to continue improving.
Unfortunately, special therapies are considered experimental and are not covered by insurance, so my family must pay the costs. We are seeking (New!) Friends of Sara to donate just $20 each. So far, in the last year and a half, $20,000 has been raised. This pays for my chiropractic treatments, hyperbaric oxygen treatments, feeding and swallowing lessons and patterning work (which I learn in Massachusetts) through mid 2005. It's been projected that at least another $20,000 is needed to complete the year. Won't you help me reach my full potential by contributing to my medical fund?
I'm sending you a big hug! And don't forget "We are each other's angels!" (That's the name of my favorite song by songwriter/singer Sara Hickman.)
